tag:blogger.com,1999:blog-3931395434180755354.post1774861533369735763..comments2023-05-22T00:37:42.639-07:00Comments on Prism*Song: When is an NT ally not an ally?Unknownnoreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3931395434180755354.post-25815802977160814792011-10-05T10:37:07.940-07:002011-10-05T10:37:07.940-07:00Bard doesn't hide the fact that there's fr...Bard doesn't hide the fact that there's frustration with this topic and doesn't hide that people making mistakes is a bad thing. It's people not learning from their mistakes that is bad. People so easily want to categorize and place those with autism in different boxes, then not allowing them to come out of it. They also have this way of not letting those with autism speak for themselves or even speaking to those with autism in a patronizing or even superior way. We seem to put autism in on this insane pedestal of "difference." And those without make it their mission to speak for those with it and to fix it. But all we see is the outside. We aren't experiencing it. How frustrating it must be to hear those who don't know talk like they know or to ignore the opinion of someone who is "high-functioning." People treat autism like it's a disease, and talk to people with autism like it's an abnormality. It's like someone said in a comment before me. It's about respect. I, a person without autism, need to listen better.bPesqueirahttps://www.blogger.com/profile/17942661208151678268noreply@blogger.comtag:blogger.com,1999:blog-3931395434180755354.post-56291759225797399912011-08-28T14:39:01.297-07:002011-08-28T14:39:01.297-07:00Thank you so much Scott, I have had many of the sa...Thank you so much Scott, I have had many of the same experiences. I get rather twitchy when folks tell me. "Please make I contact Bard" because really, that isn't your jobBardhttps://www.blogger.com/profile/11695482696257595077noreply@blogger.comtag:blogger.com,1999:blog-3931395434180755354.post-61113513468596190652011-08-28T12:03:35.094-07:002011-08-28T12:03:35.094-07:00This is brilliant and I can very much relate. I be...This is brilliant and I can very much relate. I become incredibly frustrated when people insist on viewing me as a disorder, or try and determine whether something I sm saying or doing is "autistic" or not. More often than not people seem to think autistic is a synonym for retarded and will try and tell me that I've obviously been misdiagnosed. - ScottyScottyhttps://www.blogger.com/profile/04639557799418977321noreply@blogger.comtag:blogger.com,1999:blog-3931395434180755354.post-79477279078075068472011-08-09T10:47:20.917-07:002011-08-09T10:47:20.917-07:00For one part I disagree, but only in regards to my...<i><br />For one part I disagree, but only in regards to myself. I am grateful for people speaking for me when they know enough to do so and when they leave "space" for me to correct them. </i><br /><br />I guess it's my struggle to remain verbose and articulate among my NT peers, that I have issues when NT allies think it's ok to input or to clarify what I am trying to communicate. I have very select people like you that can play "translator" especially when I drop mask and go mute. Problem is some NT allies think because they "BFF" status they have that job when I shutdown. They end up speaking for me thinking that they are being respectful and useful when I never gave them that permission.<br /><br />There is a certain feeling of nakedness when one is meltdowning or in a state of distress. I feel that any words I try to utter are drowned or ignored. I feel at the mercy at whomever is with me at the time. <br /><br />It's a reminder on how this is not my world. This is not really my home. Especially when one is exhibiting SIB and your SO is holding your arms down telling you "Just relax dear" <br /><br /><br />TL;DR I agree it's all about respect and understanding's one's boundries. Perhaps I should make a caveat that this is mostly regaruds to me another self-advocates I've worked with.Bardhttps://www.blogger.com/profile/11695482696257595077noreply@blogger.comtag:blogger.com,1999:blog-3931395434180755354.post-81650718698149929012011-08-09T09:42:11.533-07:002011-08-09T09:42:11.533-07:00I think it comes down to respect, essentially. Peo...I think it comes down to respect, essentially. People who don't actually have respect for those they are trying to "help", are not actually being helpful. <br /><br />For me it's primarily that people assume {a label, usually nonverbal} means {some stereotype, often a variation on retard}. Perhaps I exacerbate this problem though, since I am so selective about who I use my words with and who gets ignored as irrelevant.<br /><br />For one part I disagree, but only in regards to myself. I am grateful for people speaking for me when they know enough to do so and when they leave "space" for me to correct them. It is a huge relief to put my pen away and let someone else talk. It is so exhausting to write. I suspect that maybe someone who can talk, even with difficulty, would not think the same about this, based on what you have written.Arihttps://www.blogger.com/profile/04365712318809125395noreply@blogger.com