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Monday, January 4, 2010

More With the Light and Head of the Curve

Three and Four of With the Light came in today it was nice to finally get a chance to read it. My thoughts are all jumbled again so lets see how I can organize them.

The third and forth book fixed a lot of issues from the first two. It's nice to see Hikaru developing in the other books, I'll get five soon. But from I am readying Hikaru tantrums have been less then orderly and there is more conflict. There are lot of issues that Keiko brings up in the books including siblings being short-changed and something that struck a chord.

Why the hell doesn't the frigging US have jobs designed for people with ASDs? Why the hell does Japan have law design specifically for folks with DD? I don't know if the US does but if it doesn't someone needs to get on that like flies on shit. The whole deal with autistic people in the work place and reading in book four made me sad yet passionate. We Americans need to have job places like Specialestern or have centers for people on the spectrum. It seems that we're way behind on for folks that DD. I just bugs me.

As the story progresses I know discover that Hikaru also has mental disabilies but I think that is just over dramatize that Hikaru is LD of curse what autist isn't some way. Also there is an HFA boy that show up too. This as another HFA makes me giddy. But I haven't seen an asperger autist show up yet. Over all three and four still give me hope that someone out their gets it. That we need help, not a cure. A 'cure' doesn't solve anything. I want work full time without the fear of losing my job just shortly after gaining it. It's hard when stuff just seems to be....backwards. Everything is so hard even when you're on the same level was your peers (kinda) I feel always as an unequal to my fellow staff. I just feel...unbalanced. This will never go away. Maybe...it will when I my colleagues are also on the spectrum. There will be no wall that way. I don't have to 'lie' to them and say I am normal even though I am not.

I am not normal it's not bad, but it's not helping my issue.

I wish I could write to Keiko Tobe. I want to write to her, tell her how much I aspired to tell my stories with pictures as she does. About my struggles as an autist. I wish she could see this and know someone from the US want show her that our words are important.


  1. Love the new Tikaani pic and the photo at the top. I've been looking for an address for Keiko, but haven't found it yet.

    They have a couple places here for the disabled to work, a farm/greenhouse and another place that makes salsa. They take medicaid and pay the client for the work. So, it's not a self-sustaining, profit-making endeavor, and it's primarily for the residents attached to the group homes run by two local organizations housing the disabled. The other option we have here is to go through the local MHMR for job training, but it wouldn't be a protected work environment.

  2. The Tikaani image is cropped from this http://i60.photobucket.com/albums/h39/NightStorm_02/Tikaanigoodmorningguides.png

    The crappy part of it all is the fact that people like me won't qualify...we're too high functioning. And I can't get 'normal' work either.

  3. Oh, that gave me a chuckle from surprise. :-) Not expecting that! That, too, is a really good drawing!

    Yes, there needs to be supported work environments for those who are higher functioning (also thinking for those with some limited intellectual disabilities, as well, like some of my son's friends) and companies willing to hire them and provide mentors who can help. That would be a worthwhile goal for ASAN, if it isn't part of it. And it's one that Kathleen and I will work on if we can get RFID to grow and blossom.

  4. XD everyone likes naked time XDDD

    I totally support endeavors for cognitively impaired autists to participate in the work place too. That is something I would fight for one-hundred percent.

  5. I am so heartbroken because I found out Keiko Tobe died back in January!
    It's sad because her portrayal of autism was so sensitive and good without pushing the idea of a cure down the throats of readers.
    There needs to be a buddy system in schools like this too. Teaching kids to be gentle towards kids who are different.

    But, ugh, I am very sad about this.