Tikaani

Tikaani
The mascot of Prism*Song
Showing posts with label ASAN. Show all posts
Showing posts with label ASAN. Show all posts

Monday, April 29, 2013

Generation Fade





Generation Fade
I suppose as I sit and write this there is a moment where I wonder if this is going to be heard at all. Or largely ignored, maybe it doesn’t matter in the scheme of things, but to me I think it’s important that we read this and understand something. Critiquing something doesn’t mean you hate it. In fact it sometimes can be an act of love. This is not a protest or an ultimatum. This is my observations and what I think might be best for the Central Ohio/OSU chapter of ASAN.

It occurs to me now, why I feel so ignored by a bunch of privileged academics in offices making choices for the National branch. It is the same feeling I get when I am ignored by a population or excluded. It’s the feeling of alienation and for an organization that has been alienated and ignored by the greater typical population, it feels ironic.  This alienation comes from not following the party line. Not actively protesting against AutSpks, or having a taupe or grey ribbon. Makes you somehow invisible, if you don’t dump your resources into traumatic emotionally exhausting protests in which we feel like we have been eviscerated in front thousands of parents. This is what has being going on with ASAN Columbus and myself. We’re being divorced by National.

Our Lead said it last night “We’re already considered a rogue chapter” during the meeting we had last night. It’s pretty much true, we’re not following the party line and we have bigger and more pressing fish to catch. Like employment, and education and health resources. We have to worry about the next generation and what they are going to inherit when we become ash and bone. Do they want a protest group against AutSpks or an organization that will help them keep their heads above water? Most of us are drowning. Autistics are going hungry, they are getting abused by caregivers, locked in institutions, imprisoned, sexually assaulted, abandoned and they only thing we are doing to help our brothers and sisters, is protesting against a bigger organization with deeper pockets and more resources. We’re fighting against a kraken with a rowboat and no one seems to question it. 

I will say though before anyone judges me, that I am against AutSpks, I think it’s horrible, but I know better. You need to reach people one at a time; you need to educate, friends, family and coworkers. You can’t assume that your pamphlets and flyers are enough; you need to sit down with them and one at a time make them see the damage. We’re already seen by the majority as that ‘militant autism group’, we shouldn’t have that reputation. But we do. It’s that reputation is why I never came out as an activist to my coworkers until recently. I don’t want to make enemies. I still don’t, but I guess this will make few now. Might as well put on my pirate hat and charge forward. 

Now I have been personally slighted. I have worked with National to make tools for the majority of autistics out there. I enjoyed it and I was looking forward to the next project. So imagine my surprise when the next tool came out (which I saw on tumblr) and it was about a topic I had a lot of interested in. So I was hurt and in pain and angry about being excluded more so because the one in charge was Mel Yergue. So Brutus shoves the dagger a bit deeper. When I asked for an explanation on why on Facebook, I get no response, I call Em Titon and we have a heart to heart. Then she drops a bomb, ASAN did see my call-out. But they though it was a suicide message, she told me that they were going to have folks call or message me to make sure I was alright. She was the only that reached out to me. No one else did. I guess they were too busy protesting to care. It’s really sad and really angering at the same time. Because even if I did overdose on tequila and Percocet they probably wouldn’t have noticed my bloated rotting ass in the bathtub until some someone mentions it on Tumblr or Facebook. If I am lucky, you guys suck at ‘suicide watch’ bytheway. 

I don’t regret anything that I am writing; I don’t regret getting a target on my ass. I don’t care, because I don’t think anyone will notice or respond to me.  They haven’t so far so why would they start now. But I will say this to all the baby activists out there, just know what you want from your work; know what you hope to achieve. Don’t join a group thinking that they will always support you. Because when you don’t follow their modus operands they will throw you away. I am nothing to this group, I have been for five years, I don’t know what they want from me or what I can do, but at this point I am getting on my Viking longshot and braving new lands without the Jarl’s support.
One more thing, I am not ‘quitting’ ASAN, but at this rate it will be soon when I am done affiliating with them.

Friday, March 4, 2011

ASAN upcoming projects

A few things are in the making with the Columbus ASAN.

-Workshops for Self-Advocacy
Coming this May with the help of the Nisonger Center, ASAN C-bus is gonna be hosting hour and half self advocacy work shops for teenagers. We're gonna be focusing on many topics and use interactive games and dialogue to stimulate and and encourage folks to stand up and speak for them selves.

-Poetry Jam: To kick off National Poetry month and world Autism Awareness day, ASAN C-bus is having a Poetry jam on April 2. A quiet and relax atmosphere totally beats any gala or Walk. It's by an autist for an autist event where folks and even parents can come bring their poetry, short stories or even song to sing. I will be doing a monologue and some poetry we will also show case art by autistic artists.

Bard out

Tuesday, November 30, 2010

Ari Ne'eman and the "Bitchplz" moment

Once again life has sucked me up and spit me up. I have been dealing with a lot issues including gender identity and dating a new man and I have honestly neglected this blog. So I am gonna try to at least draw something or post Drakkhani stuff just to keep it active.

Now this weekend was completely mind boggling. Thanksgiving itself was rather simple and the Friday after wards was more volunteer work and having a really heavy conversation with Dave. Saturday was when Ari arrived in C-bus I hanged out with him and Melanie, Nick was there. Despite the fact dad decided to go on an abusive drunken rant later that night. The weekend was highly enjoyable (oh and there was the melt down at the pizza party forgot about that)

Did I mention that I have been going through some stressful and mindblowing changes?

No?

Anyway...Monday was Ari's talk on Neuro-D. I played helper monkey and help with setting up and closing down and generally assisting Cindy Selfe and Mel (cus dats how I roll). I was looking forward to the lecture and the discourse that followed. That's until a coward showed up in the midst of all of this. There was a paper called "Neurodiversity: Treatable with early detection" I was fuming but Ari decided this was excellent debate material and had it up with him. The paper was actively protesting ASAN's socio-ethics. While I was irritated, I was more frustrated that he came and left.

Coward.

Fortunately one of the English rhetoric students decided to cut it down using logic and rhetoric. Nicely done Pat.

The lecture went smoothly and there was some wonderful questions (I asked how is ASAN and the NeuroD community going to include those that are non-verbal and classically Autistic in the debate and participate with their community) however there was definitely a "bitchplz" moment. The president of autspks decided to hog the Q/A section. She was accusatory and loud and had no regard for everyone else in the room. Then she totally pulled a "LOOKIT IMMA HERO" with asking us that if we have spent time with a severely autistic boy.

Oh no she didn't

So this is to the attention whoring martyr in the back.

Dear AutSpks minion,

How dare you. How dare you disrespect the adults in Denny Hall by your inappropriate and obnoxious behavior. And how dare you strip the dignity of the classically autistic boy you spoke of by using him like a poker chip. I was frankly disgusted. Guess wheat Barbie, I have been with autistic and developmentally delayed adults in diapers. Unlike you I don't shame him or her for having a tool to use. I have also been with autistic teens that are suicidal and had to talk one down from killing himself. Another from running away as well. Both were victim of harassment. So yeah I can play the selfless hero bid too.

However, Where were you when they need your help? Where were you when I needed your help? When I was sitting in the bus being verbally and sexually harassed. Where were you and your champions for autists? When we desperately needed tools to survive every day when we cry out to be heard and have our voices counted? Or are you just in it for the cookies and punch?

You're not a fucking hero. Stop lauding yourself as one. You don't want to help autists you just want to make your resume look good.

Fuck you
Bard.

Sunday, October 10, 2010

The Deluge

At the AutSpks protest I thought I would be strong enough to stand against the feelings of fear and hurt. Instead during wave of insults being flooded I crumbled during the deluge. There were many many moments I had to find shade and cover myself with coats to destress and cool down.

By the end of the protest I was so emotionally drained I just wanted to go home. I hard to stand strong and courageous when others think you are not good enough to.

They have no idea that I was struggling to remain verbal and clear that I was losing cognative response that I was falling apart in the most terrible way possible. They call me named and shouted at me and I could just stand their holding up signs and standing tall

While deep down I was really drowning.

This protest made me for the first time wonder why I am doing this, if what I am doing is even right. And if I am going to be swept away by the deluge of hate, ignorance and justification of genocide. Sometimes I really hate being autistic, sometimes I wish I wasn't

yet despite the feelings of fear and wishful thinking.

I never want to see my students go through what I went through and to stand against the flood.

Tuesday, September 21, 2010

Laughing Skies

It's been a strange month for Bard as of late. Change abound with working with new students and adjusting to new settings. I am feel that I feeling my oats and growing into a bigger shoes.

Mel from Aspie Rhetoric told me about a few weeks ago (late Aug) about a housing summit in MO hosted by various Self-advocacy groups on community support. From that seed I was invited by Ari to represent the Columbus ASAN chapter and help build initiatives for community living. This is a bit undertaking and I was more than thrilled to do this.

Here I am in the Central US in good ol' land of BBQ, Jazz, streetcars named Desire and corn. Hopefully becoming more than a snarky slightly bitter bard into a truly courageous and hard working adult. I am watching the skies laugh with lighting and I am glad that I had the opportunity to come.

Ari, Savannah, Paula, Scott, Elsia and Scott Robertson and myself had supper tonight preparing for the summit meeting with NLYN and SABE that is joining us. We discussed what it means to be in the community and what it means to not be in the community, accessibility, supports, choices, control and resources. It was really productive and (scored free milk) and this will set the tone for the upcoming meeting.

My goals are simply to set the gears in motion. Accessibility and resources are going to be my main stand points, I will also talk about being in the quagmire of bureaucracy and initiatives on how give the tools necessary for those with cognitive issues and non verbals, so they can find more equal footing with typical and passing peers.

I will be forthright and even downright assertive on this. I am hoping to prove myself to the rest of ASAN that I have goals and ideals but not just that. But the pit bull tenacity for change. After all, Tikaani's stubbornness is not a weakness but a positive trait ;)

Friday, April 23, 2010

Wednesday, April 21, 2010

Monday, December 7, 2009

All talk no walk

God I am so angry.

Just a quick rant before going to bed, but even though I support neurodiversity and self-advocasy. What they hell is ASAN doing to help us autists that are actually starving or homeless or relying on the Government? As Ari gone without food, unsure about his future? I don't hate who I am. I hate the frustration. That neither side is helping autists out.

We're dying here and were too busy bickering. ASAN needs to stop dick-dodging and get to work. Pro-cure or whatever needs to get their heads out of the fucking sand and help us. Because this is what your kids will become.

I want to do more than just rant. I want to stop blogging and get money into a vocational center for autists, get us jobs and housing. Gets us health benefits. I want to be independent but I am on my own but it's like walking on broken legs.

Somedays I hate myself, somedays I celebrate.

Both groups are doing nothing but talk. They need to shut up and get to work. Both sides. Both sides need to shut the hell up. Because the next tragedy on the news could be your friend, your child. Are you going to let another autist die in a insinuation or on the streets? Go without food?

What are you doing to help us adults out ASAN? Autspks? NAS? Huh?

What are you doing to solve this problem?

Sunday, October 4, 2009

Neuro D's Anthem

I heard this song on the radio today, I tell you what...it's very fitting for the Neuro'D especially the chorus.


In other news...WAY TO GO PORTLAND....


Rock it! Don't Stop It!

Friday, October 2, 2009

Viral Meme and Now open for ranting

This blog is now ready for posting and blogging. Prism song@LJ will still have Tikaani fiction pieces and more personal-blogging. I hope to see more comments.

I'll have a full Podcast on the coming AutSpks Walk for Columbus, it's the weekend after this one. Checkout ASAN for more details. But for all the Ohio aspies and auties the walk is on the 12 at the Schotstein center in Columbus, the ASAN chapter for OSU will be by the 4H building near Borrow Dr. Spread this around and continue to reach out.

For fun, I have a little meme for everyone.




Kinda cute isn't it, well you can continue the fun by saving the other image and write your own PosAUTive message, spread Tikaani around and send a good message to everyone. I would love to see what you guys come up with.