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Saturday, March 19, 2011

Having an itch you can't scratch

It wasn't long before Tikaani heard the shouts of his aunt as he bolted out of the house. His communicator still on the table as Maka chased after him, the only warning that Tikaani gave aunt, was the word "Itch"

The urge to bolt out of the house is not and uncommon behavior for autists. Occasionally I want to get out and run, and I was a "Runner" too as a child (to the point I had a baby leash as kid). Sometimes you just have to get up and go. You don't want to stay still but go, and you get up and run. I pace a lot now, and my running behavior is minimized but I still have that itch.

Currently there has been talk of a proposal for a Diagnostic code for "wandering". I have a feeling this could end badly, and push disability rights back a step. Once again people continue the notion that "we don't know what's best" and we're doing this "for your benefit" without actually discussing this problem with us. It's like every other treatment or issue with ASD. The NAA and Aut$spk rather talk to the parents and those on the outside than those that actually have the issue. Everything about this proposal feels ass-backwards and it screams justification on locking up auties.
"They have Wandering Disorder that's why we have to put him in the kennel with Spot! Honest it's not abuse! Look we have papers"
I am sure their other methods to help these kids and adults with wandering issues and I don't think medicalizing it is gonna help. We again need to cross that bridge and talk to autists on less invasive and restrictive methods to curb wandering behaviors.

Personally. I think a good "damage control" method is simply introducing your autistic child to the neighborhood and have the neighborhood get to know your kid. Having an aware community can be so helpful. Neighbors that know that "Ian" is on spectrum can benefit you. Their awareness means if he gets out and runs off, a neighbor who knows him can find him and take him home. A strong community and aware one is a boon and it's sad that I don't see that anymore. Of course you gotta be aware of who you introduce your child too, but the point remains.

I just know if I was locked up for running I would find other methods to exert that need. Most of them...would be self-injurious.

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